Branch News

Face-to-Face Meetings to Restart – 25th July 2021

In our committee meeting on the 27th June, we discussed in great detail all the input that came from our members in our 26th June virtual meeting.  We are grateful for all of the input we received and it was a very helpful in assisting us to find the best way forwards for face-to-face meetings.

Based upon the feedback in the 26th June meeting, we have changed some of our initial face-to-face events from a Saturday to a Sunday. Additionally, we took the opportunity to look more closely at where we should meet to make access to our meetings easier, as some members are finding it difficult to get to meetings in Harrow. We did a scatter plot of where our members live and concluded that meetings in the Watford/Edgeware area would be easily accessible for most members. Thus, we are looking for suitable venues in this area for our face-to-face meetings. Initially we will be looking for a venue that can accommodate us outdoors as this was a clearly expressed preference in the 26th June meeting. Please keep an eye on our dates for your diary web page for more details of forthcoming meetings:-

Dates for your diary

A Double Diamond Works Wonders!

We are not talking about a beer but a double diamond wedding anniversary to celebrate! It is really good to hear good news and March 2021 is a bumper “good news” month! We get to celebrate not one, but two diamond wedding anniversaries. On March 11th 2021, John and Jean Smith celebrated their Diamond Wedding Anniversary. Eight days later on the 19th March, Brad and Valerie Ashton will have celebrated theirs! This is a terrific milestone and I am sure all branch members will want to join the committee in congratulating John, Jean, Brad and Valerie. For those youngsters who weren’t around in 1961 things have changed! The average price of a house was around £2,600, a season ticket at Manchester United was less than £10 and it wasn’t till a year later that The Beatles had their first top 20 hit in 1962.

John & Jean
Brad & Valerie

Bill Sedger

It is with great sadness that we report the loss of one of our members, Bill Sedger. Bill departed from this world on Sunday the 10th January 2021. To say that Bill was a full and active member of our branch doesn’t really do justice to Bill. Bill really supported us and was a frequent attendee at our events, being them our simple “get togethers” in the pub for a chat, or our “major outings”. Here is a picture taken in happier times of Bill enjoying our cream tea that we served at our last “live” event, prior to the Covid-19 pandemic, our AGM held on 23rd February 2020.

I am sure all members of the branch would like to join the committee in extending our sincere condolences to all of those close to Bill. Typical of Bill, and the support he has given us over the years, he requested that in lieu of flowers, donations be made to Ataxia UK. If you would like to donate you can donate on the “For Bill Sedger” page of the Virgin Money Giving Website.

Bill’s funeral took place on Tuesday 26th January, in Ruislip.

Tony & Deanna Kaye

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Tony’s term as acting as a Trustee for Ataxia UK has come to an end. He says he doesn’t know where the 4 years have gone! However, a bit like Arnold Schwarzenegger in the Terminator movies, he’ll be back. Not on the board, but as a member of the Ataxia UK Ethics Committee. Tony leaving the board has come in the same week as he and Deanna became proud grandparents. Ruby was born to Lauren and Rob on 25th November 2020 at 06:38, 8lbs 5oz.


Chairperson: Talita Banoori
Treasurer: Tony Kaye
Secretary: Vacancy – If you are interested please contact Talita.
Fundraising: Ray Levy
Committee Members: Gillian Malcahy, Deanna Kaye & Michael Glicksman


We have our own Facebook pages, so whether you are new to Facebook or an old hand, please take a look and help to make it a lively place. If you need help with your Facebook account or would like to join the group please click on the following link to e-mail your request or query:-

Ataxia UK NW London Facebook